Service User Participation Worker
3 days ago
Coventry
About MDSC Muscular Dystrophy Support Centre (MDSC) exists to ensure that people affected by muscle-wasting conditions are not just supported, but heard, connected and empowered. We are a growing, values-led charity rooted in lived experience, community connection and practical impact. This role sits at the heart of that mission. The Role This is not a tick-box participation post. As our Service User Participation Worker, you’ll make sure service-user voice actively shapes our culture, communications and service design. You’ll build community connection, run meaningful participation activities, and capture powerful lived-experience insight that directly influences decision-making, storytelling and strategy. You’ll work closely with colleagues across communications, therapy, fundraising and leadership — translating real experiences into real change. What You’ll Be Doing Building community & connection • Designing and delivering inclusive activities, groups and events, • Creating both in-person and digital opportunities for peer support, • Developing and embedding a clear participation and co-production model, • Facilitating forums, feedback sessions and co-production activities, • Safely and ethically collecting stories, feedback and content, • Working with the Communications team to create authentic, non-tokenistic content, • Supporting service users to share experiences and influence decisions, • Acting as a trusted point of contact, • Tracking engagement and participation outcomes, • Producing insight summaries and reports You’ll be organised, empathetic and confident working with people from all walks of life. You’re comfortable facilitating groups, handling sensitive information and balancing structure with warmth. You believe participation should be meaningful, not performative. Experience of working with disabled people, health settings, charities or co-production models is an advantage — but mindset matters just as much as background. What We Offer • A role with genuine influence and visibility, • A supportive, values-driven team, • Strong commitment to training and development, • Employee Assistance Programme, • Pension contribution This role is subject to a probationary period and an enhanced Disclosure and Barring Service (DBS) check.